My daughter just took a big step towards independence with
her severe allergies. She has decided to go on a two-day church retreat with
her friends. This is a very big step for her because she has never been on a
retreat or to a camp in her 14 years. She is going to be off on her own for the
weekend—in charge and in control of her own allergy problems.
At first, it was just easy to sign up for day camps and not
worry about her going away and how we are going to make sure she is safe with
all her allergies. This was fine when she was young but as she has gotten
older, she has sat back and watched as all her friends have gone off to one
camp or another. She has been patient when they talked about the fun activities
they did or the cool new friends they have met.
A couple years ago I started talking to her about finding a
camp for her to go to. How about going to a special camp for kids with
allergies? No! What about going with a good friend to this camp? No! How about
we find a camp where I can work while you are there? Absolutely Not! I don’t blame
her I wouldn't want my Mom there either! Still, it seemed quite daunting for
both of us!
I think part of the reason she didn't want to go was that
she was nervous about what she could or could not eat. Can you imagine watching
your friends laughing and telling animated stories at the camp table as they
are gobble down their food not even caring about what they are eating? Instead,
she is wondered if that same food, someone else had made, would give her a
reaction. Or more likely, what on the menu besides fruit, could she even eat?
Our daughter’s list of severe allergies is so extensive,
(dairy, eggs, peanuts, all nuts and sesame) that we couldn't even imagine what
she would be able to eat even if she was to go. As far as I remember, the “Camp”
fare usually comprised of eggs, french toast or muffins for breakfast, and
pizza, mac-n-cheese or peanut butter sandwiches for lunch or dinner.
So when her friend asked her to go on a Church retreat and
she said yes, I was very excited but also a bit concerned. This was a big step
for her and for me. I tried to keep the enthusiasm in my voice as I told her
that I thought it was a good idea but I would have to look into the food
accommodations. That’s when her face fell. For the first time, she had felt
like a normal teenager and hadn't even thought about her allergies getting in
the way.
I talked to the Church organization and they were very
excited to have her come. We talked about the food they would be serving during
those two days. As I thought, there wasn't much she would be able to eat but I
didn't want that to stop her from going, so we talked about allowing her to
bring her own food. I was very pleased when they seemed receptive to the idea,
but was disappointed when my daughter who had been full of jubilance about the
trip, told me she didn't want to go anymore.
After a few days, we talked about it again. The reality is
that she needs to start taking bigger steps towards allergy independence; after
all, she will be going away to college in four short years. Another objection she
brought to my attention was that people would know she was different and she
would be embarrassed, all because of her allergies. At this stage in her life
this was very important to her. According to FARE, 1 in 13 children are
diagnosed with a food allergy, so there are a lot of kids out there who may
also be struggling with the same issues. We found out that two other kids will
be bringing their own food for the trip. That seemed to boost her confidence
enough that she once again decided the trip would be a lot of fun.
We also talked about how it isn't bad to be different and that
as you get older, you realize that having food allergies doesn't make you
unusual, it makes you unique. So my advice to her was to embrace what
makes her special and to let others know she is okay with being different.
It’s
retreat time!